Informed consent
Before you begin collecting data, the people affected, or their legal guardians, should understand and agree to what is happening. Informed consent means explaining, in plain language, what data will be collected, why, how it will be used, who will see it, and how it will be protected.
Consent is not a one-time signature. As programs change or new types of data are introduced, you should revisit consent so that it continues to reflect what is actually being done. In school settings, consent obligations also intersect with FERPA and special education law.
Confidentiality and accurate recording
Two obligations sit at the heart of ethical data work: protecting confidentiality and recording the truth. Inaccurate data is worse than no data, because it leads to confident but wrong decisions about a person and their care.
- Confidentiality: limit access to those with a legitimate need, store data securely, avoid discussing identifiable client information in unsecured settings, and de-identify data when it is used for training or analysis.
- Accurate recording: record data as it actually occurs, not as you hope or expect it to look. Do not estimate after the fact, backfill, or alter data to fit a desired conclusion. Use reliable measurement procedures and check interobserver agreement where appropriate.
Appropriate use of data and minimizing intrusiveness
Data should be collected and used for the purpose the client or guardian agreed to, and that purpose should serve the person's well-being. Two principles follow from this.
- Appropriate use: use data to inform clinical and educational decisions, not to surveil, punish, or label. Avoid repurposing data for uses that were never consented to.
- Minimizing intrusiveness: collect the least amount of data needed to answer your question, using the least disruptive method that still yields valid measures. More data is not automatically better, and over-collection can be invasive and burdensome.
BACB expectations on data and record keeping
The BACB Ethics Code for Behavior Analysts addresses data and records directly. In general terms, it expects behavior analysts to make data-based decisions, to create and maintain records that are accurate and timely, to protect the confidentiality of those records, to store and dispose of records in line with legal and organizational requirements, and to ensure records can be transitioned or transferred appropriately when services end or change.
The Code also emphasizes documenting consent, basing recommendations on the best available data, and being honest in how data is represented to clients, families, and other stakeholders. Treat these as the floor for ethical practice, then layer on your jurisdiction laws and your organization policies. This summary is general and does not substitute for reading the current BACB Ethics Code in full.
Building ethics into your workflow
Ethical practice is easier when the tools you use make the right thing the default. ChartMyBehavior supports this with authenticated, role-based access that limits who can see a given student data and encryption in transit and at rest to protect confidentiality. Tools help, but the responsibility for ethical data collection always rests with the practitioner.